Letter from the President
Thank you for visiting Canadian Families with Galactosemia. My name is Janice Hughes and I am the founder and current President. Our son, James, was diagnosed at 42 days of age with classical Galactosemia. When my husband and I began our research, we found several excellent Galactosemic support groups in the United States, but could not find a similar Canadian organization - and so began our vision.
Coast to Coast and expand further with your ideas and
efforts to better serve all Canadian Families with Galactosemia."
My original goal was to be a first point of contact for parents of newly diagnosed Galactosemic children; providing literature, diet information and products from national sponsors for a Galactosemic friendly diet. As I networked with other wonderful and motivated Canadian families I realized that so much more could and needs to be done for the families of Galactosemic children in Canada. And so this organization began to take shape.
Canadian Families with Galactosemia is a non-profit organization started to provide Canadian Parents a network for support, a database of safe products, restaurants and companies, uniquely Canadian resources for families with Galactosemic children, a platform to fundraise for research and gift baskets for parents of newly diagnosed children. I encourage all parents of Galactosemic children to register with us to share your stories and experiences. Parents of newly diagnosed children please request a newborn Galactosemic gift basket full of safe products from our sponsors and helpful literature and resources.
As this organization continues to evolve I hope we will build a Canadian network of support from Coast to Coast and expand further with your ideas and efforts to better serve all Canadian Families with Galactosemia. Thanks again for visiting and I look forward to hearing your ideas and helping you as a Canadian Family with Galactosemia.
Sincerely,
Janice Hughes